Finally!

Hey, everyone! I know it's been quite a while since there's been any updates, and I'm sorry for that. We didn't have internet at home. However, I'm esctatic to say that.....DAXTER IS OFFICIALLY IN REMISSION!!! My baby is healthy even compared to normal kids now. He is running all over the house and starting to talk and letting us know that it's about time to start potty training. He's eighteen months old and developmentally on track. Daxter's even in the 93 percentile for height and weight compared to other kids his age. Plus, he has grown about two inches of BLONDE hair! There is a slight bone defect under his left eye caused from when he had cancer so he'll need to start seeing an eye specialist to make sure it heals alright. Daxter will also still regularly see his oncologist and will regularly have scans to make sure nothing is coming back. Daxter is living proof that God is in control! Thank you all for all of the support and love you sent our way; I am absolutely positive that it helped. There's no way I can adequately tell you how much your prayers and thoughts meant to my family and me. They were and are priceless.

Love always
Bailey

No Living Tumors

Daxter has NO LIVING TUMORS that they can see on scans at this moment. The doctor is doing three more rounds of chemo to make sure nothing is hiding. He will then do more scans, and if there are still no living tumors...Daxter will be declared CANCER FREE!!

He's not quite there yet....but he's very close. It is nothing short of a miracle. Praising God everyday for this blessing. Round 1 of chemo is done, two more to go...

Hopefully the next post will be a cancer free post...

Another Round

Daxter has been doing just wonderful! He is gaining weight and starting to catch back up developmentally from his long hospital stay in October/November. He finished another round of chemo about two weeks ago and so far he is doing wonderful with it. After this round of chemo there will be new scans done...and we are praying for a CANCER FREE result. Please keep Daxter in prayers.

I know its been a long time

We apologize for the lack of updates on the blog over the last few weeks. Honestly until now there hasn't been a lot to post. The holiday's were busy for everyone and Daxter was doing very well.

Daxter was admitted for a short stay on Christmas day because of another staph infection. This has seemed to become common during chemo. He was dismissed on new years eve doing well.

He started his fourth round of chemo last week and unfortnatly he isn't doing very well with it. He has been having nonstop diaherra and vommitting and was very dehydrated. He also passed a gallstone. He has been extremely fussy and irritable. Bailey and Grandma haven't gotten much sleep this hospital stay. He hasn't able to eat anything at all for several days now. They are going to try to feed him an ounce every three hours today to see if he can keep it down. If he can't they will have to try other methods to keep him nourshied like a feeding tube.

Please keep Daxter in your prayers, this round of chemo is hitting him especially hard for some reason. Please also pray for Ben, Bailey, Debbie and the family because they are getting little rest and are hurting watching their baby boy in pain.

I will keep you updated as much as I can.

Round Three

Daxter started his third round of chemo yesterday and is doing well. Overall Daxter is doing very well. Please keep him in your prayers as the complete this round of Chemo.

Changes...

As you can see, Daxter's blog is in the process of changing. Renee McGuire is helping us redesign the blog so that it looks better. As the redesign happens you may see overlaps and so on, please be patient as its redesigned. The blog posts will still be available. Thank you to Renee for your hard work.

A VERY GOOD WEEK

This week, Daxter had his tumor removed from his abodmen. The doctor reported that he did very well and they got the ENTIRE tumor. This is amazing news! The remaining tumors are hopefully going to disappear with Chemo. Daxter still has a long way to go but we are praising God for this major milestone in his fight against this cancer. Daxter is doing well and is on his way home today.

Today is the Dodge Ball fundraiser for Daxter and his family. It is at Wellington High School from 12:15 to 4:00Pm. Come out and support Daxter! Praying for Daxter bracelets will be available for sell. Thanks to Cheyenne Brooks and her friends for putting this together!

A very good week, lots to thank the Lord for this week. Please keep praying...

Praise the Lord!

The scans are back....and Daxter's abdominal tumor is small enough now to be removed by surgery!!! This is wonderful news. Praise the Lord!!!!

A relaxing Thanksgiving and a new Hickman

Hey everyone, Thanksgiving was so nice and relaxing. It was nice to have some form of normal back in our life for even just a few days. Daxter is doing well. He had scans done right before thanksgiving to see if his tumors are shrinking with the chemo and we should know the results soon. Daxter is also getting his hickman replaced today which is a minor surgery so please keep him in your prayers.

What do you all do for thanksgiving?

A post from Dad

Ben Here:
Sorry that we haven't posted much lately but the internet issue keeps us from posting a whole bunch. Daxter is doing much better. There are plans to do a CT scan to see if the chemo is working on the 23rd of November. We are very excited to get the results to that because we know the scans will show great things! I have started going back to work on a somewhat regular basis. We are still trying to make plans to go to New York for Sloan-Kettering hospital but are running into issues with the insurance. We know God will work it all out however. They are replacing his hickman on Monday the 1st of December. Thank you all for you comments and prayers.

God Bless,
Ben

Home Again, Home Again

It turns out Daxter didn't end up needing his PICC line replaced and as it is working fine and Daxter was doing much better....Ben, Bailey and Daxter packed up and headed back home. As of yesterday, Daxter is now home once again. They are glad to be home again because its more relaxed and they can sleep in their own bed. As Daxter's WBC begins to climb back over the next few weeks, they are turning their attention to their first visit to Sloan-Kettering in NY. Daxter is doing very well and I am sure that God's hand is just surrounding him because he is just handling everything so well!

In the meantime.... I am working on several things at once to continue our fundraising efforts.
1) A variety show/concert sometime in Jan
2) donation cans will go up around Wellington sometime after Thanksgiving
3) If anyone knows a way or a place who would be willing to donate internet service to the Rosewicz's home so they can post and email the doctors at SK hospital please email me ASAP

Thank you all for your prayers and if you wish to or can help with anything as far as fund-raising or even if you have some ideas....please email me at Katcdh@yahoo.com


Don't forget the donate button on the sidebar! Its sooooo easy to donate that way! :)


In him,
Kristin

Eccoli

Daxter has Eccoli again. This is the infection that kept in the hospital this weekend. However this time the infection is in his PIC line and so it needs to be replaced. In order to do this, because its minor surgery Daxter's White Blood cell count must be back up. As it just hit bottom because of the chemo treatment he received, it means that Daxter will be in the hospital for several more days so that his WBC can go back up and they can replace his PIC line. Once this is done and he is released again, it is looking like they will head to Sloan-Kettering in NY. Please keep Daxter in his prayers as he fights this infection.

A hospital stay

Just a quick update, Ben, Bailey and Daxter got checked into Wesley hospital yesterday.  He started running a fever and needed a blood transfusion so they admitted him to monitor the fever and so he could receive the blood transfusion. They had planned to be dismissed last night late, but sadly Daxter has another infection. So, Daxter will be in the hospital through the weekend to be monitored during his infection. He is eating well, and his stats are good but please continue to keep Daxter in your prayers.

In him,
Kristin

Now you can donate online!

Thanks to a suggestion, we have activated a pay pal donation link where you can make donations to Daxter and his family right here online using a credit card or a pay pal account. So if you've wanted to donate but haven't quite got that check in the mail, now's the time!

another note, I am working on getting Ben and Bailey a way to post to the blog from home, so hopefully they can post more!


In him,
Kristin

JOY only the Lord can Bring

Kristin Here:
Ben and Bailey WILL post later today for those who want to hear from them.

However first I want to share something with you all. Through my work with Bailey, Ben and Daxter as well as the rest of their family, I have cried many tears. Tears with them as the reality of Daxter's condition sank in, tears as they started a difficult journey fighting this Cancer, tears of sadness when Daxter got so sick, tears of joy when he got better. I have also cried many tears on my own for so many reasons I can't even list them. I cried tears of joy when we counted the money after the dinner, and cried tears of joy with Debbie when we revealed the amount to her. I cried all the way back to Wichita that night because I was just simply Amazed by the love and support of hundreds of people that day. However, most of all I cried tears of Joy, of thankfulness because I serve a Mighty God, a God who loves me, and who loves this family. I cried because I had Joy that only the Lord can bring.
This week, I had another moment where I was simply overwhelmed with tears. They were not tears of sadness but tears of Joy. A moment of pure joy, joy in the Lord. A moment of thankfulness that brings  you to  your knees. I then had the oppurtunity to share this moment with Ben and Bailey and join with them in the tears and joy of the Lord. Let me explain what happened:

Since the beginning, I have done countless hours of research online and on the phone looking for support for this family. When they started talking Sloan-Kettering, I knew we were facing a HUGE challenge fiancially to get them there. I prayed and asked God to make a way because if Daxter needed to be in NY for treatment, then that is where he would go no matter what. My research led me to several foundations that I will be talking about over the next few weeks.
However, this moment of Joy was brought to me and the Rosewics's by a foundation that I would like to introduce to you:

Meet Devin Laubi:
Devin was born to Andrew and Robin Laubi on August 23, 1996, a perfectly healthy baby boy. He lived his whole life in the small town of Westport, MA. His community and family enjoyed watching hi grow, learn and explore his new world. Deven emulated his big brother Reid, especially in sports, which he excelled in at an early age. Devin's energetic, adventurous, playful nature endeared him to everyone. Being smart, funny, precocious...yet innocent, kept everyone entertained. HIs younger sister, Audra adored him, always wanting to be by his side, the best of friends. Devin was diagnosed on Valentine's day, 2003, at six years old with an agressive brain tumor, called medulloblastoma. The family was initially told his survival rate was 70%, which ocntinued to plummet to 40%, 25% then 3%. Unfortunately 3% was accurate. Devin slipped into a coma on Easter and succumbed to his disease on April 24, 2003.
People were very generous during his battle with this disease. Trying to put a smile on a child's face, if only for a moment to let him forget his intense pain. He would ask why people were giving him so many things. His family would explain that they just wanted Devin to be happy. One day, Devin replied that he wished he had something to give back to all these people, so here is....

his foundation....

Devin Laubi Foundation was establesed in 2004 to honor the memory of Devin. In his own, words he wished he had something to give back. Giving back to those that suffer especially children, seemed to be the best gift he or his parents could offer. There are too many large organizations strictly benefiting research, his parents wanted to directly benefit fmilies of childrne suffering through cancer treatments offered in this country.

My moment of Joy in the Lord, and the moment of joy I shared with Ben and Bailey occured when I opened a simple white envelope containing a letter, the information I shared with you today, and a check for Ben and Bailey and the praying for Daxter fund. I cried tears of joy because that check was substantial enough to get Ben and Bailey to New York by airline!

I didn't cry because of the money though, I didn't cry because they would be able to go to NY, I cried simply because I was AMAZED by the love of the Lord. I prayed and asked God to help get Ben and Bailey to NY and he answerd my prayers with one little envelope. I cried because of the generous, loving, kind, compassionate parents of a little boy that I will remember for the rest of my life, a little boy named Devin. I cried for the loss of such a sweet little boy and for his parents. I was brought to my knees the day I opened that letter, and through my tears I praised God and thanked him. The joy I felt that day, is only Joy that can be felt in the LORD.

Even more so...it was a moment that Ben and Bailey could see first hand the power of the Lord, and the hope they can continue to have in him.

So to you, Robin Laubi and to you Andrew Laubi, I want to thank you from the bottom of my heart for "giving back" to Daxter and his family. I can begin to describe the impact you have had on this family. From Ben, Bailey, Daxter and myself, we can't thank you enough for loving them so much. We can't thank you enough for taking such a devastating time in your own lives and turning it around so that Daxter can get to NY for treatment. The joy you brought to myself and this family through this support, can only be described as Joy the Lord Brings.

Robin, Adrew, Reid and Audra and the rest of Devins' family, we want you to know that you will be in our prayers and your foundation will be in our prayers daily. We know God will bless you all deeply through your work.

So, tears of joy in the Lord this week! Yes, this doesn't cover everything Ben, Bailey and Daxter will need and we will still have to keep working at fundraising but the gift from Devin, has dramatically changed the picture of NY for the Rosewicz family and for that we are grateful to the Laubi's and to the Lord.

You can visit the Devin Laubi foundation at www.mydevin.org.

In him always,
Kristin

End of Round Two

Kristin Here:

Daxter has finished the end of round two of chemo. The next few weeks are going to be difficult as Daxter's White Blood Cell Count drops to 0 again. However, we know that his WBC count will go back up again and good days will return. Please keep Daxter and his family in prayers during the next few weeks.

Keep the Faith in the Lord....
In Him Always,
Kristin

Ding Ding Round Two

Kristin here:
It may be me posting for awhile because Daxter was released on Monday to go home and they don't have internet at home so they will only be able to post occasionally for a little while.

Daxter was sent home on Monday, and had scans Tuesday and Wednesday at the hospital but there are no results yet from those scans. Today round two of Chemo was started in Dr. Rosen's office and will be done all day for the next three days. So, the no visit rule is back in enforcement. After this round and chemo and his White Blood Cell count goes back up, it is looking like Daxter will be flying to new york with his parents for an evaluation at Sloan Kettering hospital which is the leading Nueroblastoma cancer hospital in the world.
Daxter is doing very well and Ben and Bailey are enjoying being home in their own bed.

In Him Always,
Kristin

PS. Please don't forget that we are still selling Praying for Daxter Bracelets!

Going Home :)

Ben Here:
Well were getting good news. They have told us on Saturday that he is doing so well with his blood count that he can start his outpatient chemo treament on monday.Meaning were going home :). The rules though will have to stay the same as they were at the hospial.We will be having to go back and forth like every other day from home too wichita to do it;but it is worth it. We will be going too New York during his 3 week recopperation from chemo. Seeing how well he is doing just made me break down and start crying with joy that the Lord is bringing him back to a healthy baby boy. I thank you all for your continuous prayer and comments and God bless you all. :)

Burlington Coat Factory

Hey, this is Bailey writing again today. Earlier today I went to Burlington Coat Factory to see if they had any cheap shoes since I just had a pair of flip flops, and when I went to pay, the cashier made me cry. After she told me my total she asked me if I would like to donate any money to help fund cancer research. So, with tearing up eyes I said, "Yes, I would because my eight month old son was recently diagnosed with neuroblastoma, and we are living at St. Francis hospital while he went through chemo and is fighting infections." She said she was so sorry and then her eyes teared up, too. Whenever I think that my baby's cancer has finally sunk in something like this happens and it feels like another slap in the face that Daxter is sick. I know he's getting better, and in the last few days it's been such a turn around from how he was just one week ago that I know he's being blessed. He's playing again and he's more alert than he was. He hardly ever needs morphine. Last night he also had a tiny peice of a rice crispy treat, and he got so excited. After he chewed on it for a while and then dropped it on the floor he was just so full of kisses and hugs. He hasn't tried to give anyone a kiss since way before we even got to St. Francis so it was so heartwarming to see him try. I'm so excited to see him acting happier, but at the same time I'm terrified to see him down again. It breaks my heart to see Daxter hurting so bad that he doesn't even want to be touched, especially since he's usually such a snuggler, like he hurt a week ago. Right now the days are getting easier, but I know they will get hard again. However, I know they will get happy again, too. I also know that soon the days will get happy and stay happy. I love him so much and I am so thankful that you all are so supportive and full of love for not only him but the whole family. It makes it so much easier knowing that people are so supportive of our family.  Thank you.

Bailey

We need YOUR HELP!

Kristin here:
I am sure most of you have heard by now that the fundraiser for Daxter and his family was a HUGE Success. We raised so much support for this family! I had tears on my way home because I was just so thankful to a mighty God for blessing the dinner and for allowing it to be such a great thing. I wanted to mention a few things, first to clarify the KAKE news article. I was not, am not a stranger to the Rosewicz's. I attend their church and have know them for awhile now. What I really said was "I didn't really know them that well OUTSIDE church before this happened." I also talked a great deal about God, and gave all the credit to him but sadly news stations often edit out talk about church and God. I wanted to clarify this simply because ALL the credit goes to God, and only God. I am sooo thankful for a mighty God who loves us so much! The success of the dinner was due to a large number of people, including Karra Atkerson, Dixie Pennigton, Suzie Arnold, Charlotte Brooks, Kim Mraz, Vickie Johnson, Jennifer Templeton and SO MANY others! It is also due to the community of Wellington and the generous loving business owners who donated to the dinner. Most importantly however, all of us Thank God for the success and Thank You for your support of this family

Next, just because the dinner is over doesn' t mean we are stopping fundraising for this family. Bracelets are still being sold around Wellington and we are in the process of developing more benefits for them. This is where we need YOUR help!


We are wanting to put on a benefit Christian concert for this family and we need artists who are willing to be a part of that. So, we are asking if you know, can contact, can ask, are a Christian band and are willing to reach out and help this family PLEASE contact me. If you know a band, send them a message. If you are a band, please pray about helping this family with a concert. If you have bands on your facebook reach out to them and tell them about Daxter and ask them to help. God will work it out but we need your help in getting the word out and finding bands who will be apart of it. It would be AMAZING if we  had to have the concert in Wichita because we outgrow a venue in Wellington. So please help us by spreading the word!
Remember...in an attempt to honor and Glorify God is everything we do, we are only looking for Christian bands!


You can email me at Katcdh@yahoo.com!

Bailey and Ben most likely will post an update later today on Daxter.