Praise the Lord!

The scans are back....and Daxter's abdominal tumor is small enough now to be removed by surgery!!! This is wonderful news. Praise the Lord!!!!

A relaxing Thanksgiving and a new Hickman

Hey everyone, Thanksgiving was so nice and relaxing. It was nice to have some form of normal back in our life for even just a few days. Daxter is doing well. He had scans done right before thanksgiving to see if his tumors are shrinking with the chemo and we should know the results soon. Daxter is also getting his hickman replaced today which is a minor surgery so please keep him in your prayers.

What do you all do for thanksgiving?

A post from Dad

Ben Here:
Sorry that we haven't posted much lately but the internet issue keeps us from posting a whole bunch. Daxter is doing much better. There are plans to do a CT scan to see if the chemo is working on the 23rd of November. We are very excited to get the results to that because we know the scans will show great things! I have started going back to work on a somewhat regular basis. We are still trying to make plans to go to New York for Sloan-Kettering hospital but are running into issues with the insurance. We know God will work it all out however. They are replacing his hickman on Monday the 1st of December. Thank you all for you comments and prayers.

God Bless,
Ben

Home Again, Home Again

It turns out Daxter didn't end up needing his PICC line replaced and as it is working fine and Daxter was doing much better....Ben, Bailey and Daxter packed up and headed back home. As of yesterday, Daxter is now home once again. They are glad to be home again because its more relaxed and they can sleep in their own bed. As Daxter's WBC begins to climb back over the next few weeks, they are turning their attention to their first visit to Sloan-Kettering in NY. Daxter is doing very well and I am sure that God's hand is just surrounding him because he is just handling everything so well!

In the meantime.... I am working on several things at once to continue our fundraising efforts.
1) A variety show/concert sometime in Jan
2) donation cans will go up around Wellington sometime after Thanksgiving
3) If anyone knows a way or a place who would be willing to donate internet service to the Rosewicz's home so they can post and email the doctors at SK hospital please email me ASAP

Thank you all for your prayers and if you wish to or can help with anything as far as fund-raising or even if you have some ideas....please email me at Katcdh@yahoo.com


Don't forget the donate button on the sidebar! Its sooooo easy to donate that way! :)


In him,
Kristin

Eccoli

Daxter has Eccoli again. This is the infection that kept in the hospital this weekend. However this time the infection is in his PIC line and so it needs to be replaced. In order to do this, because its minor surgery Daxter's White Blood cell count must be back up. As it just hit bottom because of the chemo treatment he received, it means that Daxter will be in the hospital for several more days so that his WBC can go back up and they can replace his PIC line. Once this is done and he is released again, it is looking like they will head to Sloan-Kettering in NY. Please keep Daxter in his prayers as he fights this infection.

A hospital stay

Just a quick update, Ben, Bailey and Daxter got checked into Wesley hospital yesterday.  He started running a fever and needed a blood transfusion so they admitted him to monitor the fever and so he could receive the blood transfusion. They had planned to be dismissed last night late, but sadly Daxter has another infection. So, Daxter will be in the hospital through the weekend to be monitored during his infection. He is eating well, and his stats are good but please continue to keep Daxter in your prayers.

In him,
Kristin

Now you can donate online!

Thanks to a suggestion, we have activated a pay pal donation link where you can make donations to Daxter and his family right here online using a credit card or a pay pal account. So if you've wanted to donate but haven't quite got that check in the mail, now's the time!

another note, I am working on getting Ben and Bailey a way to post to the blog from home, so hopefully they can post more!


In him,
Kristin

JOY only the Lord can Bring

Kristin Here:
Ben and Bailey WILL post later today for those who want to hear from them.

However first I want to share something with you all. Through my work with Bailey, Ben and Daxter as well as the rest of their family, I have cried many tears. Tears with them as the reality of Daxter's condition sank in, tears as they started a difficult journey fighting this Cancer, tears of sadness when Daxter got so sick, tears of joy when he got better. I have also cried many tears on my own for so many reasons I can't even list them. I cried tears of joy when we counted the money after the dinner, and cried tears of joy with Debbie when we revealed the amount to her. I cried all the way back to Wichita that night because I was just simply Amazed by the love and support of hundreds of people that day. However, most of all I cried tears of Joy, of thankfulness because I serve a Mighty God, a God who loves me, and who loves this family. I cried because I had Joy that only the Lord can bring.
This week, I had another moment where I was simply overwhelmed with tears. They were not tears of sadness but tears of Joy. A moment of pure joy, joy in the Lord. A moment of thankfulness that brings  you to  your knees. I then had the oppurtunity to share this moment with Ben and Bailey and join with them in the tears and joy of the Lord. Let me explain what happened:

Since the beginning, I have done countless hours of research online and on the phone looking for support for this family. When they started talking Sloan-Kettering, I knew we were facing a HUGE challenge fiancially to get them there. I prayed and asked God to make a way because if Daxter needed to be in NY for treatment, then that is where he would go no matter what. My research led me to several foundations that I will be talking about over the next few weeks.
However, this moment of Joy was brought to me and the Rosewics's by a foundation that I would like to introduce to you:

Meet Devin Laubi:
Devin was born to Andrew and Robin Laubi on August 23, 1996, a perfectly healthy baby boy. He lived his whole life in the small town of Westport, MA. His community and family enjoyed watching hi grow, learn and explore his new world. Deven emulated his big brother Reid, especially in sports, which he excelled in at an early age. Devin's energetic, adventurous, playful nature endeared him to everyone. Being smart, funny, precocious...yet innocent, kept everyone entertained. HIs younger sister, Audra adored him, always wanting to be by his side, the best of friends. Devin was diagnosed on Valentine's day, 2003, at six years old with an agressive brain tumor, called medulloblastoma. The family was initially told his survival rate was 70%, which ocntinued to plummet to 40%, 25% then 3%. Unfortunately 3% was accurate. Devin slipped into a coma on Easter and succumbed to his disease on April 24, 2003.
People were very generous during his battle with this disease. Trying to put a smile on a child's face, if only for a moment to let him forget his intense pain. He would ask why people were giving him so many things. His family would explain that they just wanted Devin to be happy. One day, Devin replied that he wished he had something to give back to all these people, so here is....

his foundation....

Devin Laubi Foundation was establesed in 2004 to honor the memory of Devin. In his own, words he wished he had something to give back. Giving back to those that suffer especially children, seemed to be the best gift he or his parents could offer. There are too many large organizations strictly benefiting research, his parents wanted to directly benefit fmilies of childrne suffering through cancer treatments offered in this country.

My moment of Joy in the Lord, and the moment of joy I shared with Ben and Bailey occured when I opened a simple white envelope containing a letter, the information I shared with you today, and a check for Ben and Bailey and the praying for Daxter fund. I cried tears of joy because that check was substantial enough to get Ben and Bailey to New York by airline!

I didn't cry because of the money though, I didn't cry because they would be able to go to NY, I cried simply because I was AMAZED by the love of the Lord. I prayed and asked God to help get Ben and Bailey to NY and he answerd my prayers with one little envelope. I cried because of the generous, loving, kind, compassionate parents of a little boy that I will remember for the rest of my life, a little boy named Devin. I cried for the loss of such a sweet little boy and for his parents. I was brought to my knees the day I opened that letter, and through my tears I praised God and thanked him. The joy I felt that day, is only Joy that can be felt in the LORD.

Even more so...it was a moment that Ben and Bailey could see first hand the power of the Lord, and the hope they can continue to have in him.

So to you, Robin Laubi and to you Andrew Laubi, I want to thank you from the bottom of my heart for "giving back" to Daxter and his family. I can begin to describe the impact you have had on this family. From Ben, Bailey, Daxter and myself, we can't thank you enough for loving them so much. We can't thank you enough for taking such a devastating time in your own lives and turning it around so that Daxter can get to NY for treatment. The joy you brought to myself and this family through this support, can only be described as Joy the Lord Brings.

Robin, Adrew, Reid and Audra and the rest of Devins' family, we want you to know that you will be in our prayers and your foundation will be in our prayers daily. We know God will bless you all deeply through your work.

So, tears of joy in the Lord this week! Yes, this doesn't cover everything Ben, Bailey and Daxter will need and we will still have to keep working at fundraising but the gift from Devin, has dramatically changed the picture of NY for the Rosewicz family and for that we are grateful to the Laubi's and to the Lord.

You can visit the Devin Laubi foundation at www.mydevin.org.

In him always,
Kristin

End of Round Two

Kristin Here:

Daxter has finished the end of round two of chemo. The next few weeks are going to be difficult as Daxter's White Blood Cell Count drops to 0 again. However, we know that his WBC count will go back up again and good days will return. Please keep Daxter and his family in prayers during the next few weeks.

Keep the Faith in the Lord....
In Him Always,
Kristin

Ding Ding Round Two

Kristin here:
It may be me posting for awhile because Daxter was released on Monday to go home and they don't have internet at home so they will only be able to post occasionally for a little while.

Daxter was sent home on Monday, and had scans Tuesday and Wednesday at the hospital but there are no results yet from those scans. Today round two of Chemo was started in Dr. Rosen's office and will be done all day for the next three days. So, the no visit rule is back in enforcement. After this round and chemo and his White Blood Cell count goes back up, it is looking like Daxter will be flying to new york with his parents for an evaluation at Sloan Kettering hospital which is the leading Nueroblastoma cancer hospital in the world.
Daxter is doing very well and Ben and Bailey are enjoying being home in their own bed.

In Him Always,
Kristin

PS. Please don't forget that we are still selling Praying for Daxter Bracelets!