Going Home :)

Ben Here:
Well were getting good news. They have told us on Saturday that he is doing so well with his blood count that he can start his outpatient chemo treament on monday.Meaning were going home :). The rules though will have to stay the same as they were at the hospial.We will be having to go back and forth like every other day from home too wichita to do it;but it is worth it. We will be going too New York during his 3 week recopperation from chemo. Seeing how well he is doing just made me break down and start crying with joy that the Lord is bringing him back to a healthy baby boy. I thank you all for your continuous prayer and comments and God bless you all. :)

Burlington Coat Factory

Hey, this is Bailey writing again today. Earlier today I went to Burlington Coat Factory to see if they had any cheap shoes since I just had a pair of flip flops, and when I went to pay, the cashier made me cry. After she told me my total she asked me if I would like to donate any money to help fund cancer research. So, with tearing up eyes I said, "Yes, I would because my eight month old son was recently diagnosed with neuroblastoma, and we are living at St. Francis hospital while he went through chemo and is fighting infections." She said she was so sorry and then her eyes teared up, too. Whenever I think that my baby's cancer has finally sunk in something like this happens and it feels like another slap in the face that Daxter is sick. I know he's getting better, and in the last few days it's been such a turn around from how he was just one week ago that I know he's being blessed. He's playing again and he's more alert than he was. He hardly ever needs morphine. Last night he also had a tiny peice of a rice crispy treat, and he got so excited. After he chewed on it for a while and then dropped it on the floor he was just so full of kisses and hugs. He hasn't tried to give anyone a kiss since way before we even got to St. Francis so it was so heartwarming to see him try. I'm so excited to see him acting happier, but at the same time I'm terrified to see him down again. It breaks my heart to see Daxter hurting so bad that he doesn't even want to be touched, especially since he's usually such a snuggler, like he hurt a week ago. Right now the days are getting easier, but I know they will get hard again. However, I know they will get happy again, too. I also know that soon the days will get happy and stay happy. I love him so much and I am so thankful that you all are so supportive and full of love for not only him but the whole family. It makes it so much easier knowing that people are so supportive of our family.  Thank you.

Bailey

We need YOUR HELP!

Kristin here:
I am sure most of you have heard by now that the fundraiser for Daxter and his family was a HUGE Success. We raised so much support for this family! I had tears on my way home because I was just so thankful to a mighty God for blessing the dinner and for allowing it to be such a great thing. I wanted to mention a few things, first to clarify the KAKE news article. I was not, am not a stranger to the Rosewicz's. I attend their church and have know them for awhile now. What I really said was "I didn't really know them that well OUTSIDE church before this happened." I also talked a great deal about God, and gave all the credit to him but sadly news stations often edit out talk about church and God. I wanted to clarify this simply because ALL the credit goes to God, and only God. I am sooo thankful for a mighty God who loves us so much! The success of the dinner was due to a large number of people, including Karra Atkerson, Dixie Pennigton, Suzie Arnold, Charlotte Brooks, Kim Mraz, Vickie Johnson, Jennifer Templeton and SO MANY others! It is also due to the community of Wellington and the generous loving business owners who donated to the dinner. Most importantly however, all of us Thank God for the success and Thank You for your support of this family

Next, just because the dinner is over doesn' t mean we are stopping fundraising for this family. Bracelets are still being sold around Wellington and we are in the process of developing more benefits for them. This is where we need YOUR help!


We are wanting to put on a benefit Christian concert for this family and we need artists who are willing to be a part of that. So, we are asking if you know, can contact, can ask, are a Christian band and are willing to reach out and help this family PLEASE contact me. If you know a band, send them a message. If you are a band, please pray about helping this family with a concert. If you have bands on your facebook reach out to them and tell them about Daxter and ask them to help. God will work it out but we need your help in getting the word out and finding bands who will be apart of it. It would be AMAZING if we  had to have the concert in Wichita because we outgrow a venue in Wellington. So please help us by spreading the word!
Remember...in an attempt to honor and Glorify God is everything we do, we are only looking for Christian bands!


You can email me at Katcdh@yahoo.com!

Bailey and Ben most likely will post an update later today on Daxter.

Daxter's big T.V. break!

 Sunday, October 24, 2010

Daxter was just on KAKE10 news! The article is on the KAKE10 news website and so is the video clip.

http://www.kake.com/home/headlines/Fundraiser_To_Help_Baby_With_Cancer_105639113.html

Live Well, Live Wellington....Come support this Family!

Today is the "praying for daxter" benefit dinner! Please come out to Wellington High School from 11:30-3:00 PM for a great meal. Ham, Scalloped potatoes, green beans, roll, dessert and a drink! All for $7.00 for 13 and up, and only $5.00 for 12 and under. You can't get a great meal for a better price. All the proceeds go to the family!
We will also be selling "praying for daxter" bracelets and having a bake sale at the dinner.

In HIm,
Kristin

Update from Dad

This is Ben updating today since I haven't in a while. Today, Daxter seems to be doing better. His blood count is finally starting to go up, and the doctors said that his infections are gone. Earlier I held him for a while and got him to smile and laugh. He also ate two full bottles in a row! I love this little guy and am looking forward to him getting better. I hope that he will use this experience to glorify God explaining how God got him through this and can get him through anything. Thank you all for your prayers.

Ben

Daxter Bracelets

Praying for Daxter bracelets are FINALLY in. We apologize for the delay but the UPS system works on its own schedule it seems.

Bracelets are $5.00 and you can get yours at one of the following places
* Chew Plumbing Between the hours of 8-12, 1-5
* Fabiolas
*Green Vision
*Sumner County Family Care Center
*Wild about Hair
*Wellington Health Mart
* ONLY if you are a Wal-mart employee- Wal-Mart
*The home football game Friday, October 22nd
* The dinner on Sunday, October 24th
*Before and After services at First Freewill Baptist Church, Wellington

If you do not live in Wellington, or can not get to one of these places or events and you want a bracelet, please email me at Katcdh@yahoo.com and we will get you one!

Also, please do not forget the dinner for Daxter on October 24th  (this sunday) at Wellington High School from 11:30 Am-3:00PM. A homemade meal of Ham, Scalloped Potatoes, Green Beans, Rolls, and a dessert and of course a drink all for $7.00 for 13 and up, and $5.00 for 12 and under! We will also be having a bake sale at the dinner and if you want to donate a baked good please bring it to the High School by 10:30 Am if possible or email me for a special arrangement. This is a GREAT way to get a very good meal after church and support a precious family! Please bring a friend and come support Daxter!

In him always,
Kristin

Who needs hair anyway?

Hey, this is Bailey writing again today. Since the last time I've posted, not too much has changed really. We do know that the doctors found ecoli in all three blood samples, however they think the strept or staph ( they've told us both) might be a contaminate because they weren't in all three blood samples. So they took more blood to try to find out. His platelets are up a tiny bit, but his white blood cell counts aren't. They've given him more blood and they've given him an IV for food. He also has some sort of bumps on the back of his head that they are treating with an ointment. His sodium and potassium levels are still out of order. He's also started throwing up. Plus, this morning his hair has started falling out. For some crazy reason this has been the most emotional development lately. I knew his hair was going to fall out, and I know that it's going to grow back. However, every time I pet his head and I get hair I cry a little. It's so silly though because, while I'm crying, I feel ridiculous because I can't quite pinpoint why I'm crying. I'm not sad because I know that it will grow back, and I'm not surprised or mad because I knew that it was going to. It's just hard. Other than that, not much has really changed. Thank you all for your comments and reasurances. It really does help to hear how supportive everyone is and it helps hearing that other people know exactly what we are going through. Thank you all again.

Bailey

Back In the PICU

Hey, everyone. This is Bailey writing. Finally, got my computer to let me on the internet. Well, we are back in the PICU like Kristin mentioned, and they found out that Daxter has an infection on top of everything else.  The infection is causing him to have a fever, 103.1 last time they checked. They say that it looks like a strept infection, but they haven't been able to discern for sure what kind of strept infection it is. They took a couple of blood samples from his arm and from his hickman on his chest trying to find out whether the infection is in the hickman catheter, too, or if it's still just in his blood. If the infection is in his hickman catheter, they will have to take him back into surgery to remove the old hickman and insert a new one. Currently, they are giving him several medicines trying to quell his nausea, bring up his blood cell counts (which is in the form of a shot in his leg every day), lower his heart rate, and a few antibiotics to fight the infection. They are also giving him pain medicine and an IV with sodium in it again (the doctor said he has to correct the sodium levels because the move upstairs messed his levels up) He's also on an IV full of platelets, because his platelet level is 6,000 and it should be 100,000.  His potassium levels are out of whack too, so they are giving him something to try to fix that, as well. Hopefully, my computer will cooperate with me better and let me post more frequently. Thank you all again.

Thank you,
Bailey

Less then 10 minutes-

Less then ten minutes after I posted about Bailey and Ben's internet connection issues I recieved a text from Bailey saying they have moved Daxter BACK to the PICU (he had moved Saturday back to the reg peds floor because he was doing so well). He has been moved back to PICU because his cold has gotten serious and his heartbeat is in what is called Tachyardia or in other words it is beating WAY too fast. Please pray for Daxter tonight, as he fights this cold with very little immune system because of the chemo.
We know that God is the best immune system there is, so we keep faith and hold on to the hand of God that Daxter will fight this cold off and be just fine.
I will continue to update as much as I can through the next twenty four hours if they continue to have internet connection issues

Just a note

Hey, Kristin here.


I know you want to hear from Ben and Bailey but their internet at the hospital isn't working the best right now. I just wanted you to know that they haven't been posting because of the internet problem nothing else. I will try to have them write out their updates and I will post them.

Daxter is doing well and still fighting strong.

In him,
Kristin

Wellington Daily News Article

http://www.wellingtondailynews.com/highlight/x115385116/Infant-fights-cancer



The above link will take you to the article published by the Wellington Daily News on Daxter.


In him,
Kristin

Fliers

Kristin here,

Fliers for the dinner went up today around Wellington. If you would like a flier or several to put up or pass out please contact Charlotte Brooks at 620- 326-5521 and she will be able to get you some.


Thanks!

Kristin

Praying for Daxter bracelets

Kristin Here:


There has been some confusion on the bracelets.

The bracelets will not be available for purchase until October 20th as they aren't quite ready. We just wanted to alert everyone to the news that starting on October 20th, we will begin selling bracelets of Daxter.

Bracelets are $5.00 and can be found at the following locations:

*Chew Plumbing

*Fabiolas

*Wellington Health Mart

*Sumner County Family Care Center

*Wild About Hair

You will also have an opportunity to purchase bracelets at the Wellington Home football game on October 22. 

We will also be selling them at the Dinner for Daxter on October 24th.

If you are unable to go to one of these places, and/or do not live in Wellington, you are also welcome to email me at Katcdh@yahoo.com to get an order form,  and for an additional $2.00 per package( not per bracelet) and we will be happy to mail them to you.

Bracelets will NOT be available until October 20th. 


Don't forget the benefit dinner on Oct 24th at Wellington High School from 11:30 AM to 3:00PM. Please come join us in supporting this family.

As always, donations can be sent to First National Bank in Wellington (address on sidebar).


I want to take a moment to thank you all from the bottom of my heart for loving, and supporting this family so much. I have gotten the sweetest, most loving emails from people all over the world to pass to Bailey and Ben. I can't begin to describe the affect and support you are giving to them. I see their faces light up when I share what you are all are doing and saying. They are so thankful and so humbled by every one's love and support for this family. All the facebook messages, comments on this blog, emails being sent to me (that i pass to them), and prayers have truly touched their hearts in such as deep way. They need the encouragement and I am just sooooo thankful for each and everyone of you because I see daily how YOU are making a difference in their lives through this hard time.  The Lord gives them strength but YOU give them the encouragement and love they need to keep hope and faith. So, from me personally, and I know from Ben, Bailey, Daxter, Grandma's and everyone one of their family, THANK YOU! The Lord is working in amazing ways.


In Him,
Kristin

Happy Day

Hey, this is Bailey writing again. Today was a really good day. Daxter got taken off of the IV with fluid because he started eating enough that he no longer needed it. It's so exciting that his appetite is coming back, and it's reminding me of his appetite before he got sick. He ate everything you put in his mouth. Today, he ate at least one bottle every three hours! He's also been the happiest I think I have seen him in weeks. He just smiled and giggled and was so interactive with Ben and me. We played peek-a-boo and "gitcha gitcha gitchaa" game (which consisted of whenever he lifted his arm straight up I would grab his hand and wiggle his hand saying 'gitcha gitcha gitcha') He just laughed and laughed. It was so heartwarming to see my baby happy and not hurting as much. The doctor told us that Daxter caught a respiratory virus in the nose that showed up in his blood test. However, he shows no sign of a severe reaction to the virus. We're still not sure of definite days they are going to be doing the scans, but his tummy isn't swelling more. It's the same size it was this morning. Thank you guys so much for wanting to stay updated on my son; I can't say thank you enough. I am so grateful for all of you.

Bailey

Update

Hello, this is Bailey again. Daxter is officially off of the chemo IV now. They won't put him on another chemo IV for about three weeks depending on the scans they plan on doing. I havn't been told exact times for the scans yet but they plan on doing several in the next few weeks. Daxter's body is still handling the chemo very well, but the chemo won't be completely out of his system for  another 48 hours. Unfortunately, he now has a cold. The doctors are worried that it might turn into a very bad pneumonia since his immune system is pretty much nonexistant. However, he doesn't have any sign of a pneumonia yet, which is fabulous news. Thank you all again for all of your support and love.

Bailey

FUNDRAISING INFORMATION

 

YOU ARE INVITED TO A "PRAYING FOR DAXTER" Fundraiser DINNER  and Bake Sale

OCTOBER 24, 2010

11:30 AM-3:00 PM

WELLINGTON HIGH SCHOOL

$7.00 FOR ADULTS, $5.00 FOR 12 AND UNDER

PLEASE COME OUT AND SUPPORT THIS FAMILY

Menu

Ham

Scalloped Potatoes

Green Beans

Roll

Dessert

Drink

 Anyone who wants to donate for the bake sell can bring items to the high school starting at 9:30am on the 24th of october. All donated bakery items will be sold at the dinner and the funds will go to the family!

We will also be selling "praying for daxter" bracelets starting on October 20.

You can buy a bracelet by:

1.) contacting Kristin at (316) 299-1721 or at Katcdh@yahoo.com

2) Stopping in to Chew Plumbing

3) Stopping in to Sumner County Family Care Clinic

4) Stopping in at Wild About Hair

5) Stopping in at Fabiola's

6) Stopping in at Wellington Health Mart

7) Come to the dinner

8) Attend the Home football game on October 22

Bracelets will say "Praying for Daxter" and will have this blog address on them. They are $5.00.

If you are a Business and you would like to sell bracelets please contact me for information. 

Again, all donations can be sent in Daxter's name to First National Bank

If you want to help with the dinner as a server, or set-up, take-down etc. please contact Karra Atkerson at (620) 326-3305.

Thank You,

Kristin

Pictures

Debby's thank you

Hey, everyone, this is Bailey again. Right before my mother, Debby, had to leave the PICU room she asked me if I could type up a post for her that she had written on a piece of paper. Here's what she wrote.

"Hi, my name is Debby, and I am daxter's grandma (Bailey's mom). I just wanted to say that with Bailey and I working with the public (Wal-mart) the way we do, we see so many people that are mean, rude, or just so wrapped up in their own life and their own problems that we sometimes forget there are still so many truely wonderful, caring people out there. Since we found out about Daxter's cancer it just blows my mind how many people we have came into contact with through the hospital, computer, or in person that are so loving, supportive, helpful, and generous. I just wanted to say thank you . THANK YOU. Not just from the bottom of my heart but from the whole thing.

Thank you,
Debby"

Complications

Hey, everybody, today it's Bailey writing. Today we found out that Daxter's blood cell counts are decreasing and are likely to keep going down for a couple of weeks. My mother, Debby, developed a fever blister and can no longer be in the room with Daxter and us. Also, my grandma developed a slight sore throat, whether it's from dehydration or a sickness coming on is irrevelant, therefore she can't be in the room any longer either. It's down to Ben and myself. I know we will be able to do it; we just have to work on our patience with each other. Ben was planning on trying to go back to work on an intermittent leave of abscense, but now he no longer can. He has to stay here with Daxter and me. Right now they are giving Daxter another blood transfusion to help stabilize his blood counts, and he's still getting regular breathing treatments along with his chemo. The doctors decided to extend the continuous chemo IV until Friday since his body is tolerating it so well. Everyone is still hopeful and we all still know that everything will be okay. Thank you, everyone, for all your prayers and words of encouragement and God bless you all.

Bailey

Rainbows

Hello, this is Bailey writing again today. Last night my husband went to look out of our PICU room window and right outside were two beautiful, bright rainbows. Huge rainbows that went clear across the sky. The rainbows really brought hope to my family and me. My Grandmother in particular was touched and just knew it was a clear sign that God is watching out for us and trying to tell us that everything will be okay.

Bailey

Finally a good day!

Hey, everybody. This is Bailey writing today. Daxter's chemo is going very well with no bad reactions. He's not out of the initial period of risk yet, but so far everything is good. Daxter was up whining almost all night, however he showed signs of his healthy self in the morning. He's dranken almost six full bottles! All the bottles have stayed down, which is even better! He even talked happy to the television for a little while. It's so exciting and heart-warming to see my baby returning to normal. Just hearing that babbling made the entire day so much better. Today, an eye specialist came to look at his eyes but we havn't heard anymore information about that yet. The doctor did tape his right eye closed so that it can have a chance to replenish moisture. I know everything will be okay. Thank you, everyone, for showing how much you care about my baby and my family. It makes a world of difference.

Love you all,
Bailey

praying for the best

Well, today has been very busy with doctors and nurses checking on Daxter. We got good news that they will be starting chemo on him at 7:30 pm instead of 5 or 6 on Sunday, which is a big blessing because we do not have to worry about waiting for it. I have been getting very excited about this news because I want him to get better as soon as he can. This a blessing. I pray that the chemo will do just fine and will work just like it is supposed to. They still have to make sure we know the risks. For instance, if he has kidney failure, which I pray he does not, they said that we would have to either go to Wesley Hospital  or Children's Mercy to have a dyalisis to fix it. Children's Mercy is in Kansas City which is three hours away, but it has experts who specialize in dyalisis and cancer therapy. The distance in a concern, but I'll just pray every day that it won't happen, and I just have a feeling it won't come to that. I just ask everyone to keep praying for him and never give up hope. God bless everyone and I love you all.

Ben

My Prayer

Father in Heaven, Thank you for this day and thank you for the many blessings. I pray now for Daxter, Bailey, Ben, Debbie and all their family. Daxter is starting chemo now, and I have comfort in the fact that you know this, and you know the outcome. I pray for your hand to be on Daxter and his family through this difficult time. Give them the strength and peace they need as they start this process. The Bible says that I can put my faith in you and trust in you with all my heart and I shall do that. I ask that  you guide and give wisdom to Daxter's doctors, nurses and hospital staff as they begin to fight this cancer. Be with Daxter as he starts this process and Lord, I know you will will be done. I ask you in your son's name to heal baby Daxter fully from this cancer. Take it from his body and let it not return. I ask for prayer for all the thousands of people praying for Daxter right now, and over the last few days. I pray that as they walk this road with Daxter and his family, that they may be blessed in their own lives. I ask that you give strength to those that are struggling with this and I pray that this will bring those that do not know you, to accept your son Jesus Christ as their personal savior. I ask for strength Lord so I can continue to do what you shall have me do to suupport this family in their time of need. Lord, I ask all this in the name of you son Jesus Christ.

Amen

Trust in the LORD with all your heart
       and lean not on your own understanding;

Exodus 23:25

²⁵ Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you,

Psalm 18:2

 ² The LORD is my rock, my fortress and my deliverer;
       my God is my rock, in whom I take refuge.
       He is my shield and the horn ^[a] of my salvation, my stronghold.

Important update

Kristin Again:

Bailey text me, they are moving the start of Chemo up to 7:30 PM tonight. Please everyone stop and say a prayer at 7:30 tonight.

I will be up there around 8pm to see how they are doing and either they or I will keep you updated.
In Him,
Kristin

Just some quick Notes

Hey everyone, its Kristin writing. I will write from time to time when Bailey and Ben need to get out updates and can't write or I want to share fundraiser information. For those of you who don't know,  I am visiting them twice a day and trying to meet their needs so they only have to concentrate on Daxter. I am also answering questions, heading fundraising stuff, and updating you when they can't. 

Bailey and I talked just a bit ago on the phone and she asked me to post a few things.:
1.) That starting tomorrow morning, they are asking for no visitors in the room with Daxter. He will start chemo tomorrow and they want to minimize his exposure to any outside illness. Visitors are welcome to go to the hospital and see the family and Ben and Bailey will be ocassionally coming out to talk. They just are asking for the next 48 -72 hours that no one visits Daxter. I am sure you will understand how important this is. I will not even be going into Daxter's room as of tomorrow and will do my visits in the waiting room. Thank you for your visits and love.

2) Daxter's eye has stopped dialating and they believe the tumor behind his nerve has grown into the optical nerve area. They will be seeing a eye specialist sometime today about the possibility of removing the tumor because of this. They are asking for specific prayers for this situation.


Praises:
1) Daxter is off morphine
2) They did not have to sedate him like orginally thought
3)That he is under 1 because this cancer is better treated under 1 year
4) For all the love and support they've gotten

Prayers:
1) Daxter's electrolytes/sodium levels
2) Guidance for the doctor's on the eye tumor
3) chemo preperation


Lastly, I wanted to share because I have gotten so many emails and messages on facebook asking. Yes, we are gearing up to do some fundraisers for the family. We are in the process of accessing their needs and organizing ourselves to better meet their needs. We have many ideas and will be sharing that information shortly. Please send all donations to the sidebar addresses. Baily, Ben, Daxter, and their family as well as myself and all the members of First Freewill Baptist Church of Wellington thank you all for you love and support of this precious family.


All questions, concerns, comments, ideas, etc. can be left here or can be emailed to me at Katcdh@yahoo.com

Thank you all for your overwhelming response on facebook and this blog. Please continue to pray and spread the word. We have faith in the Lord, our God who knows Daxter better then any of us.

In Him Always,
Kristin

EKG and Giraffes

Hey everyone its Bailey writing this morning. Daxter had a good night, he was still on the morphine through the night but is now completly off it. The doctor came in and said his sodium levels were very low and so they are starting him on sodium. They are also going to give him the other half of his blood transfusion this morning. They also did a EKG to determine his heart rate function before starting chemo so that they can determine if the Chemo starts affecting his heart. They are also going to do another Cat Scan to determine if the tumor behind his eye is growing. He has four tumors, one behind his eye, two in his chest, and one large one in his abdomen.  They biopsy is back and Daxter does have Nueroblastoma cancer and will start chemo tomorrow most likely.  They can not operate on him him because of how big the tumors are and they can't radiate the tumors. So they are starting the chemo tomorrow but they have to watch him for the next 24 to 48 hours because they are most critical. They say that once the tumors start breaking down that it could overwhelm his body so they have to make sure his electrolytes are good before starting which is why they are waiting 24 hours before starting chemo.   They think he may have a picked up a virus becuase he is coughing and has a runny nose.  They did a nose swab to check on this.
I am excited to see him more awake and playing with his giraffe and pink bug which are some his favorite toys. We are anxious to see the results from the Cat scan, swab, and to start the chemo. My husband and I are scared to death but we are not giving up faith and the hope we have in Jesus Christ. We know all things are possible through him and we believe in the power of prayer.  I want to take this time to thank you all for your prayers, love and support through this time. I am overwhelmed by the amount of prayers and love we have gotten and amazed at how God is working to spread Daxter's name all over the world. Please continue to pray for him especially during the next 24 to next 48 hours which are critical.  Pray that his body accepts the chemo and that he responds well to it and that it doesn't overwhelm his body.
We love you all!

Bailey

Jesus heal my son Daxter

Well this is just one of the biggest shocks of  my life and my wive's. I don't know what to say other than this is the hardest and saddest days for my wife, myself, and our families. I can't think of a time that I either haven't cried or wanted 2 cry very hard. Mostly because I have no control over this situation and seeing my little boy in so much pain just rips my heart out. Even though I have all of theses swing of emotions I know one of the most powerful person in this world that  is going to  make it all better and that is a loving and merciful God.I never would of dreamed in a million years that i would be where i am to day but im sure neither do the other families of cancer patients. This started as a small issue that just seemed like allergies that turned into the most deadliest issues that I can think of in the world. And I say this with tears down my face because it is hurts to think about it. I just pray every day for God's healing hand I and thanking him for being who he is my savior and my families savior; if he can save my soul he can save my little boys life and I have faith that he will.
Ben